As somone who has a bag of 19 prescriptions I take almost every day, this is an issue that clearly concerns me. I am indebted to NFCA for sharing it, and I post it here.
Thank you NFCA for all you do. You are my go-to source for GF and Celiac Information.
In case you haven't heard, NFCA has launched a very important survey for anyone living gluten-free, and we need help from all of you to spread the word! Here are the details:
Last November, the National Foundation for Celiac Awareness (NFCA) announced that it would conduct a first-of-its-kind research study on gluten in medications, funded by the U.S. Food and Drug Administration (FDA). NFCA, partnering with St. John's University College of Pharmacy and Allied Health Professions, is conducting this research in two parts. The first part of the study is happening now: a survey of the celiac and gluten sensitive populations.
NFCA urges all people who are following a gluten-free diet to participate. Participants will be asked about their experiences taking medicine. They will also be asked to share information if they think they might have had a gluten-related reaction to an over-the-counter or prescription medicine. Results from the survey will guide the second phase of the study: our team will test some of the medicines identified in the survey to see if they contain gluten.
This critically needed preliminary research aims to validate or nullify the anecdotal adverse experiences associated with gluten in medications that have been reported by people with celiac disease and gluten sensitivity. It is a first step to determine if more investigation is needed, which may lead to additional research, labeling, and safe use guideline initiatives. More information about the Safe Use Initiative can be found at www.fda.gov/safeuseinitiative
We are looking to generate as MANY responses as possible to strengthen our research. We need YOUR help in this effort. We ask that you circulate this message and invite all those who are gluten-free to complete this survey.
To participate in the this survey, please go to www.CeliacCentral.org/Survey. The survey takes between 4-15 minutes to complete. It closes on February 28, 2012.
When posting about this survey, please use the above survey link or post the following link to our announcement in NFCA's Research News: http://www.celiaccentral.org/research-news/gluten-in-medications-survey-now-a...
Questions? Contact Nancy Ginter at nginter@CeliacCentral.org or at 215-325-1306, ext. 101. Many thanks for your consideration and assistance.
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The information above is not intended nor suited to be a replacement or substitute for professional medical treatment or for professional medical advice relative to a specific medical question or condition. The above information is not intended to establish a doctor/patient relationship with any physician. There is no replacement for personal medical treatment and advice from your personal physician.